Mud-club

Chat & Social => The Bar - General Chat => Topic started by: Wanderer on October 10, 2005, 23:11:28

Title: Johnny Kennedy on C4
Post by: Wanderer on October 10, 2005, 23:11:28

I'd seen it before but did anyone else see the program with Johnny Kennedy. The boy who's skin fell off.

It was absolutely stunning and did make oi cry near the end. It made it into the top 50 best documentaries but I reckon it was the best.

The things he'd do to get a cuddle from nell McAndrew. No one could blame him.

He was a real star and his charity has earned over 1/2 million pounds for Eb sufferers.

Title: Johnny Kennedy on C4
Post by: Gary on October 10, 2005, 23:36:57

Absolutely Blown away by him last night.

His Bravery was astonishing, I felt very humbled watching his life story.

Words can't describe the emotions that I felt.

gary

Title: Re: Johnny Kennedy on C4
Post by: TimM on October 11, 2005, 09:26:25

Quote from: "Wanderer"

He was a real star and his charity has earned over 1/2 million pounds for Eb sufferers.

Sorry, missed the program, so can I ask a stupid question.....

Whats Eb ?

Title: Johnny Kennedy on C4
Post by: Wanderer on October 11, 2005, 10:52:49

Quick cut and paste.

EB - Epidermolysis Bullosa - is a genetic condition where the skin breaks at the slightest touch, causing painful, open blisters and wounds. EB can mean a life of extreme pain, disability and, at its worst it is fatal in infancy. People with severe EB are likely to contract a fatal skin cancer. DebRA provides specialist EB nursing, funds extensive medical research and provides counselling, welfare, respite and advocacy.

HTH

Title: Johnny Kennedy on C4
Post by: jalopy joe on October 11, 2005, 10:55:47

Puts our daily moans and groans into perspective doesn`t it :oops:  :oops:

Title: Johnny Kennedy on C4
Post by: TimM on October 11, 2005, 10:56:05

Quote from: "Wanderer"

EB - Epidermolysis Bullosa

That rings a bell now, I seem to remember seeing a program about this (but not about him) in the past, hope he is coping with it well.

Title: Johnny Kennedy on C4
Post by: Wanderer on October 11, 2005, 11:12:50

Whoops....

The documentary was actually about the six, or so, months before he died. He had contracted cancer and knew he had only months to live and decided to make sure EB went high profile as it was hardly ever talked about.

It began with a shot of his brother and mother talking about him as he'd just died. Then all of a sudden you got Johnny doing a running commentary of everything.

The documentary took you from the real highs and lows of Johnny's life (and made me think that my lows aren't all that bad) and through the full range of emotions.

I just loved his face when the glider looped the loop.

Also the engraving of a baked bean can on his coffin as well as Queen Can't stop me now!

Title: Johnny Kennedy on C4
Post by: Miniman on October 11, 2005, 11:23:40

Makes you feel very lucky.

Title: Johnny Kennedy on C4
Post by: sparkplug on October 11, 2005, 19:42:29

i watched and it makes me feel lucky that i have no problems
it must have been hard for him